Triangle
United Kingdom
Pseudomyxoma Survivor
Providing support and information for pseudomyxoma peritonei (PMP) and appendix cancers, rare types of cancer originating in the appendix.
Results.
21 groups matching “rare cancers”.
Results for “rare cancers”21 groups
Leukaemia, lymphoma, and myeloma
United States
Fanconi Cancer Foundation
A patient group in the United States. Fanconi anemia and Fanconi-associated cancers.
Kidney and bladder
United States
VHL Alliance
Our mission is improving quality of life and health outcomes for VHL (Von Hippel-Lindau) patients, families, and caregivers.
United Kingdom
VHL UK/Ireland
Patient Support and Advice, Funding Research and Public Education for von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.
Head and neck
United Kingdom
Salivary Gland Cancer UK
We’re a charity for those with rare salivary gland cancers such as Adenoid Cystic Carcinoma.
Childhood cancers
United Kingdom
Childhood Eye Cancer Trust
The Childhood Eye Cancer Trust (CHECT) is the only charity dedicated to helping anyone in the UK affected by retinoblastoma, a rare form of eye cancer.
United Kingdom
Grace Kelly Childhood Cancer Trust
Childhood cancer is a leading cause of death in children. The Grace Kelly Trust funds vital research, works with medical professionals and supports families.
Australia
The Children's Tumour Foundation of Australia
A patient group in Australia. Neurofibromatosis and tumour predisposition.
Rare and less common cancers
United Kingdom · Access and navigation
ACT for Cancer
Informing patients with hard-to-treat cancers how to explore novel trials and treatments safely.
United Kingdom · Coalition
Cancer52
Cancer52 is an alliance of over 100 organisations, united in improving the future for everyone affected by rare and less common cancers.
United States
Children's Tumor Foundation
The Children's Tumor Foundation drives treatments and a cure for NF — neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related…
International · Coalition
International Neuroendocrine Cancer Alliance
The International Neuroendocrine Cancer Alliance (INCA) is the global voice for patients with neuroendocrine cancer and genetic neuroendocrine tumors (NETs) and their…
United States · Coalition
NORD Rare Cancer Coalition
The Rare Cancer Coalition, formalized in 2017 as a program under the NORD Membership umbrella, unites advocacy organizations working in rare cancers to collaborate on…
United Kingdom · Coalition
Northern Ireland Rare Disease Partnership
A coalition in the United Kingdom. Rare disease and rare cancer.
United States
PTEN Hamartoma Tumor Syndrome Foundation
A patient group in the United States. PTEN hamartoma tumor syndrome and cancer predisposition.
United States · Research funder
Rare Cancer Research Foundation
A research funder in the United States. Rare cancers.
Australia
Rare Cancers Australia
Our purpose is to redefine cancer support so that nobody feels alone with their diagnosis. Our programs support patients from every angle;
United Kingdom
Sophie Fitzpatrick Charitable Foundation for Rare Cancers
A patient group in the United Kingdom. Rare cancers.
United States · Research funder
TargetCancer Foundation
TargetCancer Foundation advances research, provides patient support, and drives progress in the understanding and treatment of rare cancers.
United Kingdom · Support services
The Charley Ashton Foundation
A support charity in the United Kingdom. Rare cancers.