Disease-specific groupUnited Kingdom
A patient group in the United Kingdom. Von Hippel-Lindau.
What they do
Patient Support and Advice, Funding Research and Public Education for von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.
Based in the United Kingdom. Focus: von Hippel-Lindau. Listed by Cancer52. Registered with the Charity Commission for England and Wales. Latest filing: £20,076.
The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.
On the record
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