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Disease-specific groupUnited Kingdom

BHD Foundation

A patient group in the United Kingdom. Birt-Hogg-Dubé syndrome and kidney cancer.

Go to bhdsyndrome.org ↗

  • CountryUnited Kingdom
  • TypeDisease-specific group
  • CancerKidney and bladder
  • Websitebhdsyndrome.org

What they do

In their own words.

BHD is an inherited condition, characterised by the development of fibrofolliculomas (benign skin tumours), pulmonary cysts and pneumothorax (collapsed lung), and predisposition to kidney cancers.

Based in the United Kingdom. Focus: Birt-Hogg-Dubé syndrome and kidney cancer. Listed by Cancer52. Registered with the Charity Commission for England and Wales as Myrovlytis Trust. Latest filing: £594,130.

Listed on the Cancer52 rare-and-less-common directory.

The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.

Birt-Hogg-Dubé syndromekidney cancer

On the record

Registrations and listings.

Listed by

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