United Kingdom · Coalition
Cancer52
Cancer52 is an alliance of over 100 organisations, united in improving the future for everyone affected by rare and less common cancers.
CoalitionInternational
A coalition working internationally. Neuroendocrine cancer, NETs, and GenNETs.
What they do
The International Neuroendocrine Cancer Alliance (INCA) is the global voice for patients with neuroendocrine cancer and genetic neuroendocrine tumors (NETs) and their carers. Vision: a world where all patients with neuroendocrine cancer and genetic neuroendocrine tumors (NETs) get timely diagnosis, optimal treatment, support and care and ultimately a cure. Mission: raise awareness about all types of NETs; push for scientific advancements with a focus on identified unmet needs; and provide a platform for global collaboration to address the challenges NET patients and the medical community face in securing a timely diagnosis and accessing optimal treatment, support and care.
Works internationally. Focus: neuroendocrine cancer, NETs, and GenNETs. Listed by NORD Rare Cancer Coalition. US tax-exempt organisation. Filed as International Neuroendocrine Cancer Alliance INC. Latest IRS filing: $398,393.
Global NET patient-advocacy alliance (~37 organisations / 29 countries); not direct patient support.
The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.
On the record
Registered as INTERNATIONAL NEUROENDOCRINE CANCER ALLIANCE INC
Listed by
Also known as INCA.