Triangle
Rare and less common cancers
Children's Tumor Foundation
The Children's Tumor Foundation drives treatments and a cure for NF — neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related…
Rare and less common cancers.
Coalitions and single-disease groups for cancers that fall outside the big four.
17 groups · 4 countries · 14 with a verified charity or IRS record
United States8 groups
Leukaemia, lymphoma, and myeloma
Fanconi Cancer Foundation
A patient group in the United States. Fanconi anemia and Fanconi-associated cancers.
Rare and less common cancers
PTEN Hamartoma Tumor Syndrome Foundation
A patient group in the United States. PTEN hamartoma tumor syndrome and cancer predisposition.
Kidney and bladder
VHL Alliance
Our mission is improving quality of life and health outcomes for VHL (Von Hippel-Lindau) patients, families, and caregivers.
Rare and less common cancers · Research funder
Rare Cancer Research Foundation
A research funder in the United States. Rare cancers.
Rare and less common cancers · Research funder
TargetCancer Foundation
TargetCancer Foundation advances research, provides patient support, and drives progress in the understanding and treatment of rare cancers.
Rare and less common cancers · Coalition
NORD Rare Cancer Coalition
The Rare Cancer Coalition, formalized in 2017 as a program under the NORD Membership umbrella, unites advocacy organizations working in rare cancers to collaborate on…
United Kingdom6 groups
Rare and less common cancers · Coalition
Cancer52
Cancer52 is an alliance of over 100 organisations, united in improving the future for everyone affected by rare and less common cancers.
Rare and less common cancers
Sophie Fitzpatrick Charitable Foundation for Rare Cancers
A patient group in the United Kingdom. Rare cancers.
Kidney and bladder
VHL UK/Ireland
Patient Support and Advice, Funding Research and Public Education for von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.
Rare and less common cancers · Support services
The Charley Ashton Foundation
A support charity in the United Kingdom. Rare cancers.
Rare and less common cancers · Access and navigation
ACT for Cancer
Informing patients with hard-to-treat cancers how to explore novel trials and treatments safely.
Rare and less common cancers · Coalition
Northern Ireland Rare Disease Partnership
A coalition in the United Kingdom. Rare disease and rare cancer.
Australia2 groups
Rare and less common cancers
Rare Cancers Australia
Our purpose is to redefine cancer support so that nobody feels alone with their diagnosis. Our programs support patients from every angle;
Childhood cancers
The Children's Tumour Foundation of Australia
A patient group in Australia. Neurofibromatosis and tumour predisposition.
International1 group
Rare and less common cancers · Coalition
International Neuroendocrine Cancer Alliance
The International Neuroendocrine Cancer Alliance (INCA) is the global voice for patients with neuroendocrine cancer and genetic neuroendocrine tumors (NETs) and their…