Australia
The Children's Tumour Foundation of Australia
A patient group in Australia. Neurofibromatosis and tumour predisposition.
Disease-specific groupAustralia
A patient group in Australia. Rare cancers.
What they do
Our purpose is to redefine cancer support so that nobody feels alone with their diagnosis. Our programs support patients from every angle; clinical, emotional, financial and practical. We understand a person’s world has turned upside down. And we will do whatever it takes to navigate them through the chaos of rare cancer with empathy and compassion. We equip our patients with courage, knowledge and motivation to advocate for themselves and demand to be heard. We stand side by side with them, to amplify the voices of the rare community and call out inequity in healthcare. Better patient experiences and outcomes are our north star. And we won’t stop reaching for them until the story and the system changes. Our vision is that every person impacted by rare cancer will be supported from every angle, from the very beginning. We do whatever it takes to change the story of a rare cancer diagnosis through limitless support and relentless advocacy.
Based in Australia. Focus: rare cancers. Registered with the Australian Charities and Not-for-profits Commission as Rare Cancers Australia Ltd.
Patient advocacy charity (Rare Cancers Australia Ltd), not a multi-org coalition; navigators, helpline, financial, and peer programs.
The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.
On the record
Registered as Rare Cancers Australia Ltd