United States
Children's Tumor Foundation
The Children's Tumor Foundation drives treatments and a cure for NF — neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related…
Disease-specific groupUnited States
A patient group in the United States. PTEN hamartoma tumor syndrome and cancer predisposition.
What they do
Based in the United States. Focus: PTEN hamartoma tumor syndrome and cancer predisposition. Listed by NORD Rare Cancer Coalition. US tax-exempt organisation. Latest IRS filing: $110,098.
Listed in NORD membership materials as a rare-tumor PAG.
Compiled from coalition directories and charity registers; the organisation’s site did not publish a summary we could quote.
On the record