Skip to main content
TriangleGet started
Children's Tumor Foundation logo

Disease-specific groupUnited States

Children's Tumor Foundation

A patient group in the United States. Neurofibromatosis, NF1, and schwannomatosis.

Go to ctf.org ↗

  • CountryUnited States
  • TypeDisease-specific group
  • CancerRare and less common cancers
  • Websitectf.org
  • Based inNew York, NY

What they do

In their own words.

The Children's Tumor Foundation drives treatments and a cure for NF — neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2-SWN). Anyone can be born with NF; it is a lifelong condition, not a childhood cancer.

Based in the United States. Focus: neurofibromatosis, NF1, schwannomatosis, and NF2-related schwannomatosis. Listed by NORD Rare Cancer Coalition. US tax-exempt organisation. Filed as Childrens Tumor Foundation. Latest IRS filing: $20,862,188.

NF/schwannomatosis charity across the lifespan (not childhood cancer); clinic network, education, and research; not a coalition.

The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.

neurofibromatosisNF1schwannomatosisNF2-related schwannomatosis

On the record

Registrations and listings.

  • IRS Exempt OrganizationsEIN 13-2298956

    Registered as CHILDRENS TUMOR FOUNDATION

Listed by

Bring the research to your care team.

Start with Triangle

More in Rare and less common cancersBrowse all →