United States
Bladder Cancer Advocacy Network
The Bladder Cancer Advocacy Network, or BCAN, is devoted to advancing bladder cancer research and supporting those impacted by the disease.
Disease-specific groupUnited States
A patient group in the United States. Von Hippel-Lindau.
What they do
Our mission is improving quality of life and health outcomes for VHL (Von Hippel-Lindau) patients, families, and caregivers.
Based in the United States. Focus: von Hippel-Lindau. Listed by NORD Rare Cancer Coalition. US tax-exempt organisation. Filed as VHL Alliance INC. Latest IRS filing: $1,175,753.
The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.
On the record
Registered as VHL ALLIANCE INC
Listed by