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Disease-specific groupUnited States

VHL Alliance

A patient group in the United States. Von Hippel-Lindau.

Go to vhl.org ↗

  • CountryUnited States
  • TypeDisease-specific group
  • CancersKidney and bladder · Brain and CNS · Rare and less common cancers
  • Websitevhl.org
  • Based inBoston, MA

What they do

In their own words.

Our mission is improving quality of life and health outcomes for VHL (Von Hippel-Lindau) patients, families, and caregivers.

Based in the United States. Focus: von Hippel-Lindau. Listed by NORD Rare Cancer Coalition. US tax-exempt organisation. Filed as VHL Alliance INC. Latest IRS filing: $1,175,753.

The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.

von Hippel-Lindau

On the record

Registrations and listings.

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