NORD Rare Cancer Coalition

The Rare Cancer Coalition, formalized in 2017 as a program under the NORD Membership umbrella, unites advocacy organizations working in rare cancers to collaborate on issues facing their communities. The coalition works to advance awareness, research, education, and advocacy for people affected by rare cancers.

Based in the United States. Focus: rare cancers.

NORD Membership program / ~30 rare-cancer member orgs; Rare Cancer Day Sep 23; not a disease-specific patient charity; patients use members + NORD helpline.

The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.

rare cancers

No charity or IRS record is attached yet. Coalitions, fiscally sponsored programmes, and Northern Ireland charities often sit outside the registers we matched against.

Also known as National Organization for Rare Disorders Rare Cancer Coalition.