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SMARCB1 Hope logo

Disease-specific groupUnited States

SMARCB1 Hope

A patient group in the United States. SMARCB1-deficient tumors.

Go to smarcb1hope.org ↗

  • CountryUnited States
  • TypeDisease-specific group
  • CancersRare and less common cancers · Head and neck
  • Websitesmarcb1hope.org

What they do

In their own words.

Based in the United States. Focus: SMARCB1-deficient tumors. Listed by NCI MyPART Advocacy Partners.

French-American family foundation; research funding runs through Fondation ARC, so no US EIN in the BMF extract.

Compiled from coalition directories and charity registers; the organisation’s site did not publish a summary we could quote.

SMARCB1-deficient tumors

On the record

Registrations and listings.

No charity or IRS record is attached yet. Coalitions, fiscally sponsored programmes, and Northern Ireland charities often sit outside the registers we matched against.

Listed by

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