Triangle
United Kingdom
Pseudomyxoma Survivor
Providing support and information for pseudomyxoma peritonei (PMP) and appendix cancers, rare types of cancer originating in the appendix.
Results.
20 groups matching “rare disease”.
Results for “rare disease”20 groups
Leukaemia, lymphoma, and myeloma
United States
Fanconi Cancer Foundation
A patient group in the United States. Fanconi anemia and Fanconi-associated cancers.
United States
International Waldenstrom's Macroglobulinemia Foundation
Learn more about Waldenstrom's macroglobulinemia (WM), a rare type of non-Hodgkin lymphoma. Understand WM, your options, and get education and support.
United Kingdom
WMUK
WMUK - The only UK charity focused solely on Waldenstrom’s macroglobulinaemia (WM), a rare of blood cancer.
Liver and bile duct
United States
Gallbladder Cancer Foundation
The Gallbladder Cancer Foundation offers support and resources for those affected by this rare cancer. Join us in the fight for a cure.
Kidney and bladder
United States
VHL Alliance
Our mission is improving quality of life and health outcomes for VHL (Von Hippel-Lindau) patients, families, and caregivers.
United Kingdom
VHL UK/Ireland
Patient Support and Advice, Funding Research and Public Education for von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.
Head and neck
United Kingdom
Salivary Gland Cancer UK
We’re a charity for those with rare salivary gland cancers such as Adenoid Cystic Carcinoma.
Sarcoma
United States
Chordoma Foundation
The commitment and participation of everyone affected by chordoma is fueling progress that's virtually unprecedented for a rare cancer. With your help,…
United Kingdom
EHE Rare Cancer Charity
EHE Rare Cancer: Supporting rare sarcoma patients through a dedicated group, charity, and fundraising efforts. Join us in making a difference!
Australia
EHE Rare Cancer Foundation Australia
EHE Rare Cancer Foundation Australia. Raising awareness and money for research into Epithelioid Hemangioendothelioma (EHE) a rare cancer.
Childhood cancers
United Kingdom
Childhood Eye Cancer Trust
The Childhood Eye Cancer Trust (CHECT) is the only charity dedicated to helping anyone in the UK affected by retinoblastoma, a rare form of eye cancer.
United Kingdom
Grace Kelly Childhood Cancer Trust
Childhood cancer is a leading cause of death in children. The Grace Kelly Trust funds vital research, works with medical professionals and supports families.
Australia
The Children's Tumour Foundation of Australia
A patient group in Australia. Neurofibromatosis and tumour predisposition.
Rare and less common cancers
United States
Children's Tumor Foundation
The Children's Tumor Foundation drives treatments and a cure for NF — neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related…
United Kingdom · Coalition
Northern Ireland Rare Disease Partnership
A coalition in the United Kingdom. Rare disease and rare cancer.
United States
PTEN Hamartoma Tumor Syndrome Foundation
A patient group in the United States. PTEN hamartoma tumor syndrome and cancer predisposition.
Australia
Rare Cancers Australia
Our purpose is to redefine cancer support so that nobody feels alone with their diagnosis. Our programs support patients from every angle;
United Kingdom
Sophie Fitzpatrick Charitable Foundation for Rare Cancers
A patient group in the United Kingdom. Rare cancers.