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Disease-specific groupUnited States
A patient group in the United States. Chordoma.
What they do
The commitment and participation of everyone affected by chordoma is fueling progress that's virtually unprecedented for a rare cancer. With your help,…
Based in the United States. Focus: chordoma. Listed by NCI MyPART Advocacy Partners and NORD Rare Cancer Coalition. US tax-exempt organisation. Latest IRS filing: $5,362,824.
Listed in NORD’s organizational database; included here as a rare-cancer PAG.
The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.
On the record
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