United States
Children's Tumor Foundation
The Children's Tumor Foundation drives treatments and a cure for NF — neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related…
10 groups matching “rare disease”.
Results for “rare disease”10 groups
United States
The Children's Tumor Foundation drives treatments and a cure for NF — neurofibromatosis type 1 (NF1) and all types of schwannomatosis (SWN), including NF2-related…
United States
A patient group in the United States. Fanconi anemia and Fanconi-associated cancers.
United States
A patient group in the United States. PTEN hamartoma tumor syndrome and cancer predisposition.
Australia
Our purpose is to redefine cancer support so that nobody feels alone with their diagnosis. Our programs support patients from every angle;
United Kingdom
A patient group in the United Kingdom. Rare cancers.
Australia
A patient group in Australia. Neurofibromatosis and tumour predisposition.
United States
Our mission is improving quality of life and health outcomes for VHL (Von Hippel-Lindau) patients, families, and caregivers.
United Kingdom
Patient Support and Advice, Funding Research and Public Education for von Hippel-Lindau Syndrome (VHL) and similar genetic conditions.
United Kingdom · Coalition
A coalition in the United Kingdom. Rare disease and rare cancer.