United States
Neuroendocrine Tumor Research Foundation
Neuroendocrine Cancer Research And Education To Help Improve, Extend And Save Lives. Online Expert Info For Patients And Families.
Disease-specific groupUnited States
A patient group in the United States. Pheochromocytoma and paraganglioma.
What they do
Learn more about the longest-standing, internationally recognized leader in advocacy for, and awareness of, pheochromocytoma and paraganglioma here!
Based in the United States. Focus: pheochromocytoma and paraganglioma. Listed by NORD Rare Cancer Coalition. US tax-exempt organisation. Filed as Pheo Alliance. Latest IRS filing: $214,437.
The opening description is taken from the organisation’s own website. The rest is compiled from coalition directories and charity registers.
On the record
Registered as PHEO ALLIANCE
Listed by
Also known as Pheo Alliance.