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Disease-specific groupUnited StatesDormant

SDH-Deficient Cancer Research Advocates

A patient group in the United States. SDH-deficient GIST and SDH-deficient cancers.

Go to sdhcancer.org ↗

  • CountryUnited States
  • TypeDisease-specific group
  • CancersSarcoma · Thyroid and neuroendocrine
  • Websitesdhcancer.org
  • Based inAshland, OR
  • StatusDormant

What they do

In their own words.

Based in the United States. Focus: SDH-deficient GIST and SDH-deficient cancers. Listed by NCI MyPART Advocacy Partners. US tax-exempt organisation. Filed as Sdh Cancer Research Advocates INC.

sdhcancer.org no longer resolves (September 2026). Still listed as an NCI MyPART advocacy partner; community activity is via a private Facebook group.

Compiled from coalition directories and charity registers; the organisation’s site did not publish a summary we could quote.

SDH-deficient GISTSDH-deficient cancers

On the record

Registrations and listings.

  • IRS Exempt OrganizationsEIN 82-4123925

    Registered as SDH CANCER RESEARCH ADVOCATES INC

Listed by

Also known as SDH-RA, SDH Cancer Research Advocates Inc.

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