United Kingdom
AMEND
AMEND is a UK registered charity providing information resources and support services to families affected by multiple endocrine neoplasia
Disease-specific groupInternational
A patient group working internationally. Adrenocortical carcinoma.
What they do
Works internationally. Focus: adrenocortical carcinoma. Listed by NCI MyPART Advocacy Partners.
Compiled from coalition directories and charity registers; the organisation’s site did not publish a summary we could quote.
On the record
No charity or IRS record is attached yet. Coalitions, fiscally sponsored programmes, and Northern Ireland charities often sit outside the registers we matched against.
Listed by